Tag: stem cell transplant

So now I am on the way home! Sorry I didn’t mention this in my last entry, but we thought it would be nice to surprise people! Prof Johnson came round early afternoon yesterday and said that he was happy for me to go home today. He gave me several bits of advice. For one…

I have been quite tired today, but that’s because, in spite of having a good sleep, once I’d woken at 5am I couldn’t get back to sleep. I hope that doesn’t happen at home. Hopefully, it should be better at home, where there is less background noise. My neutrophil count was down slightly at 2.5,…

I know I say it a lot, but there really isn’t a lot to say today. Neutrophil count is 3.8 (up a little again). I spoke with my brother on the phone this morning, watched TV all day, didn’t do my exercises, and ate a little bit of food. Still not time to go home,…

No sermons today, you’ll be pleased to hear. I actually slept better last night than I have the whole time I’ve been here – still only 5.5 hours though, but it’s something. The reason it wasn’t a bit longer is that last night there were workmen repairing the road literally underneath my window – at…

The night wasn’t too bad, although being connected to the IV made it less restful than it would otherwise have been. But in contrast to yesterday I spent the morning feeling tired and lounging around doing nothing. I’d made up my mind I was going to try to eat today. The smell of food was…

I didn’t sleep well really. The pain in my gut and my headache started to come back half way through the night, once the codeine and paracetamol had worn off. It’s probably the most painful nights I’ve had, and I felt quite sorry for myself in the morning. 6am every morning is blood tests (taken…

I have almost constant discomfort, bordering on pain, in my gut. It feels like bad heartburn or indigestion. Apparently this is expected, and is due to the Melphalan, the most potent of the chemo drugs I’ve had. Prof Johnson was on ward rounds today. He’s the top consultant for blood cancer in Hampshire (so I…

In relation to how I’m feeling, things are still getting worse. And I’m now at my most vulnerable too, so things could get even worse quite quickly. When I got up for the toilet in the night I came over with a cold sweat and almost passed out, and I’ve just been lying in bed…

I lose track of days, but it must be Saturday today. Heidi came to see me this evening rather than during the day, because of all the kids stuff on (and bits of Christmas shopping still left to do). And she’s staying overnight in the relatives’ room so that she doesn’t have to travel back…

I’m only about half way through my hospital stay. And it feels such a long time to go until I get home. And even when I get home I know it’s going to be a long road to full recovery. I’m definitely starting to feel the strain on my body now. Tummy ache and going…